In my twenty-three years as a cardiologist, I have worked with countless families striving to navigate the complex challenges of caring for a critically ill loved one. In that time, I have met few more dedicated and caring than Jim Williams and his family. As with many families in similar situations, the Williams family found themselves in unfamiliar territory, making decisions under tremendous pressure, often with limited information. Jim and his family did their utmost to learn from and cooperate with doctors and nurses, proactively finding creative ways to help Jane cope and improve Ð a true testament to their commitment and resolve. The lessons they learned as JaneÕs condition took its course were hard earned. These serve as the foundation of this remarkable book, unique in its wealth of practical solutions for many of the most common situations and decisions facing advocates of loved ones in need of ongoing medical care at the hospital and assistance at home.It contains useful tips and advice relating to stroke and rehabilitation, but most of the issues addressed are not necessarily disease, affliction or even age-specific. They can be applied to a wide range of conditions requiring acute care, including elective surgery, Òelderly diseasesÓ like stroke, cancer and AlzheimerÕs and those faced mostly by younger patients from trauma due to auto and motorcycle accidents as well as athletic injuries. After 3 1Ú2 years of actively participating in his motherÕs care, Jim spent another 2 years writing and polishing this book into its present form: a user friendly, practical handbook for advocates. It is indeed well named. I am confident that this book will be an invaluable reference and resource for families and caregivers. Perhaps more importantly, I know it will provide a measure of reassurance to those facing seemingly insurmountable health challenges that they are not powerless Ð and they certainly are not alone. Jon Kobashigawa MD |
The Patient Advocate's Handbook Home Page
Chapter 2 Before Leaving The Hospital: Questions To Ask Doctors And Nurses
Chapter 3 Before Leaving The Hospital: Arranging Visiting Nurses And Therapists
Chapter 4 Before Leaving The Hospital: Arranging Home Healthcare Equipment And Supplies
Chapter 5 Extra Equipment At Home
Chapter 6 Staying Organized At Home
Chapter 7 Oxygen Equipment And Respiratory Issues
Chapter 8 Suction Machines And Equipment Troubleshooting
Chapter 9 Antibiotics And Infection Prevention
Chapter 10 Tube Feeding Issues And Tips
Chapter 11 Original Medicare, Private Insurance And Billing Issues